Wow, it's been so long since I last wrote! So sorry for that! I've been busy and then tired and then busy and then tired... but hey, aren't we all? I am so not in writing mode right now so if this is a little off, sorry again.
Guess what I did the past couple days? I got out!! LOL And not just out, but away! Just because I can't do much doesn't mean I don't want to.
I've been concerned about any longer trips as the whole blood clot risk as well as I can't stay in any one position for a long period of time, especially if not laying down. But I talked with my doctors, and I had the whole back seat to put my legs up (which helps tremendously!) and off we went!
First stop, to get my teeth cleaned lol. If anyone needs a good dentist in Peoria or Bloomington, let me know. My uncle and everyone in his office are awesome!!
Second stop, Avantis! Oh yes how I missed you cheap but delicious Italian food.
Third stop, the burg to rest for the night. It helped to have a few stops to break up what would be a longer trip. I went down to the pool thinking I could do some aquatic therapy on my own since I had to skip this week. Oh my goodness, warmest pool ever! I used to love that but now heat is bad for both MG and POTS so it was just a quick dip for me. Customer appreciation week at the hotel- chips, popcorn and CHOCOLATE! Score!
And then what I've been wanting to do for years... visiting my college! My dad was asked to do some sort of class thing so my mom and I went just for fun. The plan was to wheel chair around the whole campus to see all the new stuff they have done, but thank you to the rain that didn't happen. However, rain didn't stop us. Fortunately, every building we drove up to we found a parking spot right there in front! So I got to see the new academic building which (yay!) has an elevator! I learned just how not accessible my college really was... you never think about that when you are able bodied. Then stopped for a delicious sandwich that I have oh so missed. On to the bookstore to visit the lady we knew there and see what fun stuff they're selling.
Yikes, after all that I was burnt out. But, I had planned to see my favorite professors so we headed over early so I could get a little rest break. All 4 of my communication/PR professors came over to visit. It was so great catching up with them and sharing some pretty funny stories! At the same time my mom was visiting with one of her college friends, so after my professors had to leave for class I went and visited with her too. So nice to see her even if it was a short hello.
We then drove around campus about to leave but decided to knock on the house of my sorority that wasn't there when I was there so we got to see that, drive past the oh so memorable frat houses and football field, with one last stop at Shopko! LOL Hey I couldn't go to that town without stopping there. Thank God for wheel chairs.
And the next morning we headed out. Short but sweet visit... and I made it!! The most difficult/tiring thing was the packing and unpacking. My arms, shoulders, back and chest are burnt out... and what am I doing? Typing to continue using all those same muscles. Smart ay? haha I promise after this I'll rest up. I have all weekend until the craziness of appointments starts again.
I thought going back would make me wish I were living in that town or back in college... but it didn't really. Now I feel it's a great place to visit, but I don't think I could live there. What it did make me miss is being healthy. It made me realize how very much I have cabin fever! I want to get out, travel, explore, be active again! I want to just do whatever comes my way and go wherever life takes me! But, I am limited within the confinement of this thing called an unhealthy body. I still have hope. I still look forward to the day when I can wake up, bounce out of bed and go for a run. Who knows, that day COULD be tomorrow!
After this visit I thought of how to describe my illness again since my "looking fine" is very deceiving. So it's like this, imagine a battery that isn't fully charged. It doesn't last as long if you don't charge it all the way right? So imagine that I'm that battery always running on like 1/4 a charge. I like to say I can do almost anything, just like a battery can, but I just don't last long before needing to be charged up again aka rest. That's why I look just like anyone else but I quickly run out of energy before everyone else.
With that said, I'm feeling very nomadic... lot's of cabin fever! So, Lord, please grant me better health so I can get out and about more. I promise to do Your will, whatever it is, but I want to spread it further than through written word. Let me spread the love through action. Let me travel and visit and experience and live. Amen!
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