Part 2

I'm back... So, in summary of Part 1... I've had ongoing symptoms for over 3 years. Though I received the MG diagnosis last year, there were still all these other symptoms that didn't fall under MG, so after surgery I pushed on to get it figured out. God led me to the hospital, to the doctor and to the diagnosis.

The good news is I am SO happy to finally again have a word to put to all my symptoms... and this time it covers pretty much all of my symptoms. In addition, I most likely do not have achalasia or a heart condition... per say... (you'll understand what I mean by that later).

More good news is the hope... My doctor thinks that the majority of my problems stem from this second diagnosis, not the MG. He thinks my MG is probably not too bad, that I have it pretty mild. That would be awesome! It would also explain why I've been at a stand still even after trying various treatments. With this second diagnosis, there again is no cure, but symptoms can lessen with medication and there is again the chance of going into remission. Those who have it again very much vary as you can be near "normal" and work and such all the way through the spectrum to being completely debilitated. It is very much like MG in the sense that no two people are the same.

More good news is that is it similar to MG in the sense of what you should do... kind of sort of... What I mean is that for both you need to stay out of the sun/heat, not take hot showers, rest a lot, do things in spurts/not all at once. I've already been doing all of that for the MG so I'm a step ahead there. If you listen to your body, you'll naturally do what you're supposed to without even knowing it.

What else can I tell you about it before getting to what the diagnosis is? Well what does treatment include? People with this need to drink a LOT of water... makes sense why I drink more water than anyone I know. IV fluids help... yep, I've noticed that without knowing I had this. Increase your salt intake.... I LOVE salt, so that works out pretty well. You have to be extremely careful with medications as people with this have extreme medication sensitivity... yep, I'm a pro at experiencing that one. Now for the real treatment... unfortunately, a lot lot lot of different medications (of course at very low dosage)... maybe only one or two, but maybe a lot more, really depends on the person.

For me, my doctor wants to start first on a beta blocker. That's what scares me the most. First of all, we're messing with my heart here, that's kind of scary. Second, beta blockers are on the "be cautious with" list for MG... has the potential of bringing on a crisis ie. respiratory failure/needing a breathing tube. They also lower blood pressure and mine already drops very very low so that is concerning too. He feels the benefits outweigh the risks and that without medication I'm not going to be able to function in life. I will probably be starting this medication this week and praying to God I don't have any serious side effects/negative reactions. If you could join me in prayer for that I would very much appreciate it.

Well I think I've typed enough for now. I think I'm going to make this be a 3 part story instead of 2. I promise next time I will tell you what I have been diagnosed with. I'll try to write again tomorrow.

Thanks for reading! Thanks for praying! God bless! :)