Updates, requests, etc.

Hey everyone! Just a bunch of random things I want to update, ask for, etc.

Diet Update

The special diet I'm on is... well, it is... still happening. The good part is my food cravings have subsided. No longer am I intensely desiring bread and butter, a Jimmy Johns sandwich or chips. Along with that, the thought of anything with sugar, carbs or dairy doesn't even really appeal to me... which is how it was for me before I started the diet. Once you cut out the junk, your body and brain no longer even want it.

The bad part of this diet is I've had some really weird days. I had a couple days of so much energy mentally, and more than normal physically, that I just talked a thousand words a minute to make up for the running I still can't do to expel the energy lol. But then started the days of feeling so exhausted, drained, tired, weak, just wanting to sleep. My doctor warned me I would have to take it easy but she said "the first few days or weeks." This is day 8 and I feel like I got run over by a truck. I want that energy feeling back! The confusing part is I don't know if this is due to the diet, die off/herxing, lyme and/or MG. But I'll take it as it comes, because that's what you've got to do with chronic illness.

Testing Results and Prayer Request

That aside, a few weeks ago I had a brain mri done. Story behind this-
When I was living in Texas and trying to get a diagnosis, the neurologist there ran a brain mri as part of all my testing. It was normal the first time. She ran it again a year later when I was still not diagnosed (she was thinking I had MS- similar symptoms to MG) and it showed some sort of cyst or something that wasn't there before. So I was told to have these repeated annually. Since my return to Illinois, it showed the same, so it was kind of placed in the back of my mind as no big deal. Well it was over a year since the last one was done. At my last appointment with my primary care doctor, he wanted to order one not really due to this past, but due to increased memory and thought process problems. I thought it would show white matter like it does on MS patients because Lyme Disease can do that (many who have lyme have been misdiagnosed with MS). The result it did show I was not at all expecting: small chronic hemorrhage. Um, yikes. That's bleeding in my brain. That's very scary. And how chronic could it be if it didn't exist 2 years ago? Thus how much worse can it get in a short time? So many thoughts running through my head. But the nurse told me just follow up with my neurologist. Ok so it's probably not that serious since they didn't send me straight to the ER. I can relax a bit. Still scary.

My neurologist looked at the imaging and report and agreed with the findings. So she just told me she wants me to get another brain mri done in 4-6 months to see if there are any changes. Thus, I am asking for prayer about this. Please pray that this is no big deal, nothing to worry about (somehow?). Please pray for God to ease my worries and know He's got this, He's got me and I can feel peace and comfort in that no matter what may come next or come later down the road. Thank you!

Blog Stuff

I just wanted to take a moment to thank everyone who takes time out of their day to read my blog. Thank you for caring about me enough to read my updates and/or wanting to learn about these different conditions and/or spread awareness. Every piece of that means something to me and is much appreciated. I had no idea a simple idea of making one place all family and friends could check in to read my updates while in the hospital would turn into over 25 thousand views only 2 years later. That's incredible. I LOVE to write and I'm able to do what I love while spreading awareness. Sounds simple, but it's a blessing to me. So thank you everyone. God is so good!

I have one request. You see that area off to the right side "Follow by Email"? If you haven't already, could you please sign up? That just means when I write a post, you will receive it by email. Read it, don't read it, it's your choice. But if I get enough people to sign up I can be a book reviewer, which is um, awesome! Free books! More writing! Yes please! Once signing up, you will receive an email to confirm your subscription. Please click on that or it won't count. If you signed up but didn't confirm, please find that email to click on or try to re-sign up. There was a problem for a while with my posts actually not getting sent to those who signed up, but I played with some settings and seem to have fixed it.

Anyways, I talked enough here. Thanks again for reading, for praying and for being of encouragement to me through every part of this journey called life. God bless!