Rough days

Yesterday was rough.

MG has been pretty bad. All over weakness. But also I've been doing so much reading, my eyes were so weak. When I read, and am very focused, I tend to clench my jaw, so my jaw and the rest of my face was also very weak. When my eyes and/or face get weak, it turns into horrible head/face pain. It's also affecting my swallowing. I just pray it stays away from my breathing, please God please.

Then last night was rough.

I think both my blood pressure and blood sugar dropped. For some reason when my blood sugar drops I also get nauseated. So I got my bp and blood sugar up but the nausea continued... pretty much all night. Thus also a lack of sleep.

Today I didn't eat anything, or take any meds or supplements, until just about now, 3:30pm. I was holding steady and felt like my body just didn't want anything more in it. But then came the blood pressure and blood sugar drops again, and the hunger to follow, so I ate. Still holding off on meds for the moment.

I'm still weak but stable. My stomach feels better and I think that break was needed.

I don't think this is really due to the diet- I mean it is, but it's isn't. I don't feel it's due to adapting to the diet, as that has already happened and I felt it. But this I feel is due to one of two things.

1. My sugar intake, even though natural from fruit, is still much higher than it ever is normally. Sugar, even from fruit, is bad for me. I'm trying to keep it low but smoothies without fruit are pretty eh. And I haven't found another strong enough source of potassium for me besides a banana. Apples wake me up. Regardless, too much fruit when you are limited to only meats, veggies and fruit.

2. I'm wondering if I'm getting too much magnesium. Not too much for a healthy person, but too much for me personally. Magnesium can potentially cause Myasthenia Gravis to get worse. I personally am extremely sensitive to it. Small amounts make my MG worse so I have to be careful/read labels. Well, there are no labels on fresh vegetables but dark leafy greens and avacados I know are high in magnesium and I've been eating a ton of both. But what else do you do when once again you can only have meats, veggies and fruits?

See, I had been eating healthy for a while. I cut out gluten, dairy and sugar (besides fruit). I reduced the consumption of gluten free grains, ate organic and non-gmo whenever possible and only consumed soy if it were organic, non-gmo, and corn only if it were as part of a supplement or rare occasion. I had it figured out in order to keep my health stable- not good enough to do more, but stable enough to remain out of the hospital for the most part and I was satisfied with that. But now, we go shaking it all up changing what my body is used to. Yes, this may be even healthier, but my body may be like what is going on here! I'm willing to remain patient with this diet and give it more time, but if I don't see any improvement or if I continue to decline over the next several months, then I'm going to conclude this is not the diet for me, and go back to what I figured out works on my own.

Once again, you don't realize what you have until it's gone. I want to feel like I did before starting this diet. Yes it meant resting more than not, following my known limitations even if I don't want to or others don't understand and watching what I eat... but it also meant I could get out more on my own without feeling like I shouldn't because I'm too weak, which meant more freedom and a higher quality of life even if still much below the norm. So I guess instead of wishing I had that, I should be grateful I'm still home instead of the hospital, have the ability to eat all this food and the tools I need to monitor my bp, blood sugar, oxygen, etc.

It's not that hard mentally to eat this way. But it is hard to feel like you never fit in and no one understands you, when the rest of the world around you lives differently, because they can. Be thankful for what you can do and supportive to those who cannot. God bless.