Something happened a few days ago that hasn't happened before and isn't normal. It's too personal to allow the whole world to read about here. Anyways, I need to get a test/procedure done this coming Wednesday to see what's going on. Because of this, I've had to stop several meds/supplements for 5 days prior.
It's only been 3 days off so far and yikes, I'm seeing how much these meds/supplements really do help me.
First, I have felt like I'm getting a bad cold. Of course I could be and that would not be good at all but it seems all too coincidental that it paralleled my stopping garlic, oil of oregano and turmeric supplements as well as stopping drinking green tea. I take these for several reasons- one being my body has an immune deficiency so I can't fight off illness well and these help, and two being to fight candida- systemic yeast overgrowth starting in the gut from too many antibiotics.
Second, my pain has increased... joints, neck/head, back, throat. This happened after stopping my flaxseed supplement which I was told to take for pain and inflammation before I was even diagnosed with anything. I don't tolerate pain meds well so this is my go to supplement and it also has omega 3s which I am slightly deficient in.
Third, my mood- yikes. The rage, anger, emotions, I hate it. I feel like something is in my brain and I need every ounce of me to fight it. But I can't control it and I know exactly what it's from- coming off the rifampin. That is the prescription med used to treat bartonella, the lyme disease co-infection. Sometimes I think it's even worse than the lyme. Some people can get this mild form of bartonella typically from a cat scratch or bite, but this form of it is nothing like that. The physical and mental symptoms are absolutely horrible.
Forth, my MG has been acting up. I've been weaker, back muscles are spasming like crazy, eyelids are so droopy, breathing has been tougher- not a good thing going into sedation. I really don't know why this is happening. The only thing I can conclude is my one doctor is absolutely correct that the lyme/bart are bringing out the MG and now that I am on less to control it, it's attacking more and MG is getting worse.
It's all one big mess and it gets so overwhelming. This is the first time in a long time I can't wait to go back on my medications/supplements. It's so sad I need so many things to control all of my conditions and symptoms. I've been on lyme and bartonella treatment for 6 months and there is no end in sight. I've had MG and POTS for about 5 years now and never gone into remission. It's a constant battle that is all too familiar to me but too unknown to everyone who doesn't fight it. It makes you feel alone, lost, hurting. These diseases don't have an end in sight like cancer does. It's not either this will happen or that will happen. This is life. This is my life. I continue to pray daily that the Lord heals me fully, but at the same time I remember how He uses our weaknesses to show His strength. I must look at that as a gift, that God has chosen me to show His great strength.
Please pray for me- that these symptoms subside, that the test/procedure goes very well with no complications and no further diagnosis, and for total healing which I will continue to pray for according to God's will each and every day. Thank you and God bless.
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