Yes you can!

June is Myasthenia Gravis Awareness month. 

For those who have asked me at one point or another or many times, "Is there anything I can do?" and I never really had an answer. I have an answer now. Yes! There is something every one of you can do, and I ask that you please do it!

Please help spread the word. Share this blog (share button to the right). Share that picture. If you have facebook, go to my profile, pull that picture above which I have set as my top photo, and set it as your own top photo for the month of June!

Many of us who have MG plan to flood awareness this month. Please don't mind it, but rather join in and help. If you had a serious but extremely rare illness that no one knew about and was hard to understand, wouldn't you want to get the word out? We will appreciate it so much so!

Yes I still have Dysautonomia/POTS among other things but this month the focus is MG. This month I am going to try to share stories from others who have MG. My purpose is to show you more than just my experience with this. It's to show you the battle we walk every single day of our lives. 

It's to show you when you see someone who "looks fine" they may actually be far from fine. They may have a huge scar through the middle of their chest from a thymectomy. They may have several small scars or a central line still in place from plasmapheresis treatments. They may have just come from the doctor where they were told there was nothing wrong... or worse, there was nothing left the doctor could do for them. They may have been on a ventilator. They may need oxygen or a bipap machine every night, or even during the day. They may have several other diseases like me which only complicates things. They may have been abandoned by family and friends who no longer have the patience to care for them. They may be in a tremendous amount of debt from medical bills because they can't work and have been turned down for disability. And some, sadly, you won't see, because MG took their lives. 

Rare does NOT mean less serious. Myasthenia Gravis is both rare AND very serious. We need people to understand that. We need support. We need doctors who know how to treat this. We need medications that work. We need a cure. Let's all take the first step in finding that cure by flooding social meeting and anything else you can think of this month with Myasthenia Gravis, MG, with everything teal (the awareness color). Let's make it known this is serious and this needs attention NOW, before another life is taken by it.

Thank you and God bless.