Monday, October 14, 2013

That's a wrap

I originally started this blog to keep my friends and family informed on how I was doing. It's difficult to email or call so many people and repeat the same thing over and over. This was my go to point. I also thought it would be great at making my family and friends aware of what MG is because it is so rare. Thank God, I haven't been back in the hospital since I was discharged from my pulmonary embolism the end of April, so my "progress" hasn't really changed. Thus this blog has become more of a space to talk about different things that happen in the life of someone with MG, and now also with POTS.

I never imagined my blog would turn into what it has. Nearly 11,000 views. I am beyond amazed. I am so thankful for all of you who read my blog and share my blog. My last post has over 400 views on it alone. Things like that are a breakthrough in spreading awareness. That is what us MGers need, awareness. So thank you so much for reading. Please keep spreading the word. Make Myasthenia Gravis a household name... so when we "look fine" we aren't judged as actually being fine, so when we land in the ER in crisis we aren't sent home being told our ox sat is normal (it can be normal while our life is on the line), so that our family and friends know how they can help and that we still need them in our lives and appreciate them staying in our lives, so that we can get more funding to find a CURE! Again, thank you.

I did just a little updating and need to do more to create a page about POTS now too. For now I added a subscribe by email button. It's to the right of where you are reading this right now. I know since doing so some have told me they subscribed. However, I also know many started reading just recently. So I wanted to take a moment to re-post some of my top blog posts. Anyone who hasn't read them or just wants to read them again, here you go (from oldest to newest so they make sense when reading)...

Thankful  We have much to be thankful for.
Just a thought Explaining why we with MG do what we do... or don't do.
Great Article  The spoon theory.
Goodbye Thymus To anyone facing thymectomy, speaks of my experience right after. Remember everyone is different.
Pulmonary Embolism The risk became real.
Unclutter your home Unclutter your mind Because I'm a neat freak... and because it helps.
Listen to your body  It could save your life.
Random Optimism Just for fun.
Adaptation Good for family and friends to read to learn the changes we HAVE to make in our lives.
Truth Sometimes the best place to find it is from the patient.
Appreciate You can always find the good within the bad.
Part 1  These next 3 are about my POTS diagnosis and linking to more information about it.
Part 2
Part 3
Did that just happen? Some people DO get those horrible side effects we are warned of.
Fun Just because we are chronically sick doesn't mean we can't have fun.
Suffocating from the inside out The most recent and most popular post speaking of MG crisis/warning signs.

Also, on the top of any page you can click on the links to my story, learn more about MG, q&a and what you can do to help. There is a lot of information and I hope to continue to bring you more.

Lastly, if anyone wants items to bring awareness- shirts, mugs, bags, even items for pets!- please visit www.cafepress.com/fightmg for Myasthenia Gravis items and www.cafepress.com/DysautonomiaAwareness  for POTS/Dysautonomia items.

I am so blessed to be able to make the most of my illness through doing what I love, writing, as well as designing items, both to promote awareness. You all have made this possible by being committed to encouraging and supporting me, and of course by reading my posts, donating to the cause and purchasing my items. I truly appreciate each and every one of you in my life. Above all else, all the glory goes to God. He has transformed me in a way I used to think was not possible. I can do ALL things through Christ who strengthens me. Philippians 4:13 It's true.

Thank you! God bless.

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