Friday, March 22, 2013

Plan to not plan

Hi everyone! Well it looks as if, God willing of course, this is finally going to happen! Once again I had to coordinate my own admission and pre-certification, but whatever, I'm used to it now. Is God preparing me to become knowledgeable in a billion different jobs so that when I'm able I have my choice of any?? Hey why not. Anyways...

Admission to [name removed] at 8am Monday, March 25th. They said they will probably do the minor surgery for line placement that day and plasmapheresis treatments starting either Monday or Tuesday. The plan is to get treatments every other day estimating 10 days, 5 treatments. But as I titled this, plan to not plan because I've learned by now plans don't actually happen as planned.

The purpose of plasmapheresis treatments is to prep my body to tolerate surgery. Surgery is set to take place April 9th.

We will not know until I get going on treatments exactly how many will be needed, how long it will take, or if I'll be discharged home or stay there up until surgery. We also won't know how well my body tolerates all of this. I've heard of other MG patients doing absolutely fine and feeling like they used to before MG and I've also heard of other MG patients who have flat lined out. Hey, let's pray for the best here, ok?

I would LOVE to have visitors if I'm feeling up to it unless of course you don't mind sitting next to someone laying in a hospital bed too weak to talk... that's cool too. Talking on the phone isn't my favorite especially if my arms are weak. I'll be on the computer as soon as and as much as I can.

I've been back in IL 2 months now. I thought this surgery would have been over and done with by now. But again maybe this is for the best. The first month was filled with doctor appointments and I was still really weak. But this second month I've had only a few doctor visits but seen more friends/family and had more time to myself just to take time with my own thoughts. It's been fabulous honestly. Who cares if it could be better? I've done everything I can to make it the best it can be, I can't control others nor am I going to put any effort into trying. It's time for me! I don't want to sound selfish but guess what, until I take care myself and get my health better, I can't possibly have enough in me to focus on others as much as I'd like.

In the past week or so I started getting really nervous about this admission. But I talked to a friend who's had his fair share of hospital visits and surgeries, and he told me to focus on the end result, and that's what I've been doing ever since. And I'm pretty actually very excited for the end result because I'm being optimistic in thinking remission will come my way! And in all that I've been through not only with my health but other stuff some of you know all about, oddly it has filled me with this intense joy... not what it was or what I'm going through and struggling with, but the fact that I'm still pushing along! The fact that I am doing it and I feel happier and happier each and every day, and I'm growing each and every day. God is absolutely amazing! I want to go on and on but I'll save it for another day. For now, know this:

God is my strength. He will carry me through this and everything else I am going through and will later go through. We are given free will but if in our free will we choose His will we will be given so much more than our own minds can even fathom. I hope to one day share my full testimony to this.

Please keep me in your prayers for successful treatment and surgery with no complications, little pain, and leading to full and permanent remission... with those who mean much to me staying in or coming back into my life full of support and love. I know it's a lot to ask but we must not limit God because what He can do is limitless. If you have any intentions you would like to ask, please let me know as I would love to raise you up in prayer... especially with the many many hours I'll have laying in a hospital bed giving me much time alone with myself and God. God bless everyone who is taking the time to read my story. Thank you.

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