If you didn't already read her actual birth story, start there. Those are the good parts.
I said I'd write more. I'm finally getting the chance to.
So, the not so good parts about her birth story... Well, the hands off was really hands off. I know it's because of not enough nurses on duty but I had to wait a long while quite a few times. We were there several nights, and one night that I really needed sleep I asked for her to go to the nursery because she was waking every 30 minutes, literally. They took her, then brought her back to me saying they had no one to work the nursery at the moment and would come get her when they did. That was over 4 hours later. From prior to midnight until after 4am I was awake with Eliahna the whole time. Then of course at 6am someone comes in to check on me, so I really got no sleep. It's really frustrating because the nursery is there to care for the babies, yet there was no one available to care for the babies. Real nice.
Edited to add this- I can’t believe I forgot this part. This was the worst part!! When they brought my baby back to me she REAKED of a perfumey smell! They either fully bathed her or at least washed her hair… when I clearly said NO baths! I was devastated! Not only because that means I didn’t give my baby, my last baby, her first bath, but much more so because it took away her new baby smell! The very smell that bonds a mama and baby, the smell that brings on those feel good hormones. To not have that at a day or two old was absolutely devastating. And I was angry. It was the one nurse I didn’t like- the one who was loud and obnoxious and forceful. The rest were pretty good but there is always that one, the one you hope you don’t get. To take that away from me with my last baby was so so sad. The smell came back a little bit, but not nearly to what it was. That’s something you can’t get back and it broke my heart as silly as it may sound. I longed for that bonding smell with her. ðŸ˜
The food was much to be desired. Not just the way it tasted. The last time I had a baby at this same hospital, they brought J and I a big table full of a special meal, even sparkling juice, for our after birth celebratory meal. This time they still brought a meal for J and I but it was just a typical hospital meal, nothing at all special. So I missed that because it was nice last time. In addition to that, the caf wasn't open at all during dinner or any meal on the weekends. We just so happened to be there over the weekend. So we had to order out a LOT. Thankfully there was door dash and stuff but that adds up fast! Hospital food isn't tasty but it's cheap and convenient.. yet that wasn't an option.
Overall, it very much went downhill there since I had Z.
Afterwards, getting home, we had family here for only the first week. After only 1 week postpartum, then it was like sink or swim. I think we sank. A mom is supposed to rest at least the first 2 weeks after having a baby. I didn't get that luxury and I honestly was not so happy about it. Yes family helped for sure. But with 2 other kids and family visiting, I was doing just as much if not more than usual. I personally like no visitors at first but that’s not exactly possible to have help and no visitors when you have no local family. I was overwhelmed, as I’ve been after birth with visitors so soon here. It’s a no win situation for an introvert with no local family. I at least got an afternoon of just J and I and Eliahna. Honestly I needed 2 weeks of that… Then when family left, oh my goodness. The boys got their rashes AGAIN as soon as they went back to their preschool program. This was a disaster. What this meant was when J went to go pick them up, I would of course be caring for E. When the boys got home I would cook dinner plus care for E while he bathed them. Then I had to go put ointment on and bandage their rashes. This literally took an hour- an hour of muscle usage wrapping bandages for me takes me down fast. As us 2 juggled the 3 kids, all needing us at once. Then I'm trying to get dinner plated while still juggling all the above, then rush through my own meal to care for everyone else. Trying to balance bedtime nursing E but reading to the boys, with all of them seeming to want to go to bed at the same time. Then leading into the night...
Z has been a nightmare with sleep. He is SO attached to J that J has had to sleep with him overnight, not with me, not being available to me with E. We tried sleeping in the same room, Z in his own room that first week after family left. Z would start screaming at the top of his lungs when he woke up. So then I would wake not only for E but also Z. J would try to get Z back to sleep while I stayed awake with insomnia after I woke up. Joshua would also then be woken up. It was a nightmare. Finally I said just go sleep with Z because I can't handle this. So that's what happened meaning I cared for E all night and J had the boys if they woke up. It's still like that. Biggest problem is with my neuro muscular disease, lifting her over and over, caring for her literally around the clock 24-7 with little to no help IS. NOT. FEASIBLE. It's not a matter of "oh you can do this." Or "God's got this." Ok great, but I quite literally have a condition that puts me at risk using my muscles for hours on end without a true break. No one seems to get that unless they have what I have. Even then, most have family help, I don't locally at all. It's not that it's hard, I can do hard. It's that it's not possible under such circumstances to keep it up without me further declining or being useless to everyone.
Joshua also reverted back to trying to get into the kitchen every chance he has and eating whatever he can get his hands on. He breaks through baby gates and locks. It’s been insane.
Thankfully, after their preschool mowed, the rashes went away. I believe it was bugs in the tall grass biting them then when they scratched it got infected. Then just this past week E started sleeping through the night after we took her to a massage therapist. 4 out of the past 7 nights she slept til at least 4am without getting up overnight. That's wonderful! If I can at least get 5-7 hours of sleep I call it good. If I wake in the middle of the night, I can't fall back asleeep. If I don't get woken, I can sleep fairly well. So this is a huge help to me and I hope and pray it keeps up. But she's 8 weeks old now. It took nearly 8 weeks to get to this point. 8 weeks is the full amount of time I myself specifically am supposed to rest and take a break. HA HA HA- no break at all. It's a miracle I'm surviving, for real.
On top of that, E has a dairy allergy, a true allergy not a sensitivity. But she's also sensitive to soy and eggs. So I've been trying to navigate cutting out all 3 in my own diet. That's been the easier part even though not easy at all. The harder part about is has been the extreme judgement. I can't even believe it. People can be so cruel. Maybe they mean well, maybe not. But the number of people who have practically attacked me one way or another saying it's not an allergy (ok you barely know me or don't know me, haven't even met my baby, but please keep telling me this which is not helpful) or telling me do NOT under any circumstances resort to formula. Good grief. I know cutting out dairy, soy and eggs is HARD. I also know using formula is not easy. BOTH are expensive! There is no better or good option here. I have to do whatever I have to do to feed my baby. She was miserable. And no one considers how I feel in any of this. To feel like I can't even provide milk for my own baby, it's heart wrenching. Really. It's emotionally painful. I'm doing my best here. Since cutting it completely, I had a few mistakes with the soy and eggs, but for the most part we've had zero rashes, zero projectile vomits, only a little mucus and a little itching. It's hard for my family as well. I know J is sick of the same basic meals. I know the kids want to go out to eat once and a while. But navigating a food allergy when eating out is very difficult, on top of the challenge of adjusting to 3 kids 4 and under. I'm not complaining, I'm speaking the truth.
So travel is pretty much off the table for now. I can only handle so much and I don't need to apologize for mine or my baby's needs in that. I just get very frustrated so many people in this world seem to have expectations and judgements on others when they don't even fully comprehend their situation thereby making it even harder than it needs to be on them, instead of being supportive and loving as we all should.
Anyways, given all we've had to handle on our own, I think I'm doing pretty darn well emotionally. However, the biggest emotion is frustration as I’m sure you can tell. It's so so hard not having family or close friends here. Especially now with 3 kids just occasionally wanting a break and not being able to get it. I do have the sin of envy of those who have grandparents or others nearby who they can send the kids to for a night or weekend, who get to go out on an actual date kid free, who get delivered all the meals from a big church or lots of local friends. It's so hard not having that. It makes me frustrated, sad, upset we don't have that. It makes me upset my kids don't have that. And there is so much more to it but I'll stop there.
I'll continue with the point of explaining why I'm also frustrated when people say move. I don't think people understand or care to believe the complexity of our situation. The reason this works here right now is because we have a house to live in and J's job allows him flexibility to help with the kids and home while I also help with his work stuff. We cannot afford another home rent or buy in this market. He cannot take on a second job because I truly need the help with the kids and home. I cannot take E out alone because I can't physically lift her baby carrier with her in it and I can't baby wear to carry her around without the carrier into the stroller. I cannot take the 2 boys out alone because well, they are a bit crazy. This is life with chronic illness whether people like it or not. Furthermore I tried to get us out of this situation years ago and well obviously things did not go the way I tried to get them to go, I should say the way I felt God lead us to go. Anyways. So this is what it is and that brings frustration also.
Furthermore again, moving away isn't as easy as some people seem to think it is. J cannot drive in any state any of our family lives. J not driving means I have to drive literally everywhere. That uses muscle. Thinking about the day to day of life... when we have to take the kids to an appt I can't both drive one of the boys but also have E to nurse her. J would need to be with me for that to happen. J usually takes the kids to appts or all of us for that reason right now. Things like quick errands or driving the kids to and from school. It all adds up for me. If you add in all the driving completely on me, how would I be able to also manage the kids and home. Doing all the driving, so all the shopping, every appointment, every single errand, possibily driving him to and from a job if it wasn’t living right here, driving the kids to and from school, etc etc. I wouldn't. I couldn’t. Especially if you add on top of that a job where J didn't have the flexibility he has now. Even if family helped they aren’t going to drive us literally everywhere every single day. Maybe down the road when the kids are older and can handle more themselves, then yes maybe I can do it. But not now, not at this stage, it’s not possible for me to do even more than I’m already doing. Again think about me what you will but I’ve adapted to the life I’ve been given and it’s manageable… WHEN things are adjusted to how I need them to make it feasible. Otherwise I simply cannot do it.
There is further complexity to this I won't explain here. Then of course the income having to work out, enough to afford a home, etc. etc. Things people aren't really thinking of. Just up and buying or renting a place we cannot afford would be flat out stupid. Sorry but it's true. There is so much complexity to this. I wait on God's lead. I tried to before but it didn't happen... and now I feel, stuck, waiting on God to lead again. We are here for now and for the unseeable future because that is where God placed us. We are here for a reason. And we truly are blessed to be here even though it's frustrating not having family and such.
I know this sounds like one big complaint post. Whatever you think, go for it. I'm just being real. People don't like me for it, fine. This is who I am. I shared the good last time, I'm sharing the not so good this time. Because that is what life is. It's not all carebears and cupcakes and I don't support anyone who acts like it is. I also don't support dismissing people's feelings. Feelings and emotions are real. Ignoring them, dismissing them, telling someone others have it worse, or focus on the positive (aka being dismissive not acknowledging) does. not. help. What helps is listening, hearing, trying to understand, validating, empathizing, and being supportive or helpful in any way you can.
So if anyone is actually reading and still with me here, I'm going to create a third post... because I can't right now. I’ve been writing this on and off throughout the day but it’s the end of the day and Eliahna is crying to be picked up. Stay tuned for ways you can maybe help. We'd be grateful. Thank you.
Again if there are errors, I'm sorry. I don't have time to edit right now. Thanks for reading.