Need not impress

Hello hello!

I'm doing pretty well not letting what others think/say about me affect me. As long as I'm doing what's right in the eyes of God I feel that's what matters. However, for the purpose of awareness I'm going to speak on the topic of others and their affect on MGers.

I used to think I was realistic, laid it all out there, the facts. The facts weren't so great, my health is not so great. How others responded to this was by telling me I'm being negative, not seeing the positive. Easy for someone without many or any health issues or other serious issues in life to say. I know because I used to be there.

Now, while I speak the facts, I feel I do so in a much more positive way. I'm definitely a more positive person. You would think those who used to tell me I was being too negative would like this, but no. Instead they are the same ones who judge that I must be better since I'm more positive about it and thus why don't you go get a job, etc. 

I've come to the conclusion there are just some people you can NEVER win with. Some people just don't want you to be happy, even if they don't realize it or admit it. Again, if I'm striving to live up to what God wants for me, I need not impress any human being. It's not a race, there's not a winner, so I'm not going to compete with you. Of course though when that support is lacking, or worse yet an argumentative force coming against me, it definitely makes it harder and makes my MG worse.

So here's the deal. I'm not any better in regards to my MG. In fact, this may be the worst I've ever been consistently outside of my times in the hospital. However, my attitude and outlook about it is the best it has ever been. How is that possible? Well God is my strength.

Have you ever lifted weights until your arms felt dead. Well take that feeling and then add some heavy wrist weights to you after that workout. That's how my arms feel when I'm trying to do something as simple as wash my hair. I bring my laptop into bed so that I can type with my arms rested flat. Have you ever ran a marathon, half marathon, cross country, anything that tired you out? Well take that feeling and then add the feeling a toddler has when they are first learning to walk. That's how my legs feel after walking for about 5 minutes. Have you ever had an elephant sit on your chest? No? Me neither. But that's how I correlate the feeling I have when trying to breathe- yes, trying to breathe, because though it's supposed to happen naturally it's an effort for anyone with MG. Have you ever been on a cruise ship? That's how my coordination and eyes feel unable to steady my focus or maintain balance for a long time. I could go on but I'm sure you get the point.

So if you know someone with MG (I'm thinking you do if you're reading this :) ) or any other chronic illness, try not to judge. Try not to force your opinion about how they should live their life unless they ask. Try to put yourself in their shoes and understand how much they are going through and compared to life as they used to know it life is very hard. Try to look at the positive like you tell them to do. See how they are getting through it and getting through it with a smile. Focus on the positive with them. Ask how you can help. Be of support, not devil's advocate. Show you care. Show you want to understand. Just love love love. Show your love.

I feel this post was a little bland. Oh well. Need not impress, only inform. :)