Hey everyone! I've been really slacking on writing lately. Things have been crazy. I came for an extended visit to TN Jan-Feb and didn't have my laptop. Then my trip home to IL turned into a round trip back to TN to continue a course and pre-marital counseling. I brought my laptop but with J trying to sell his house, things were crazy hectic back and forth. I was staying in the parsonage, he was staying in an empty house half the time, his other house the other half. Then we decided let's not wait anymore, got engaged in March, planned a quick wedding to get married in April, May was full of stepdaughter's events, and here we are in June. Had a local reception just the other day and going to have a couple more receptions with family and friends in the coming weeks. I keep saying hopefully in July it will all slow down a bit. I need it to slow down, I need a break here!
But somehow through it all, my body keeps on pushing along, struggling but pushing. Pushing is not good for MG so I really do need that rest. I'm surprised I've made it this far. June is Myasthenia Gravis awareness month and yet I've not done my share of promoting awareness this year. Every time I get a break I'm too exhausted to think let alone write. So I'll just share this which I think is important to understand about anyone who has Myasthenia Gravis (or possibly could apply to a number of chronic illnesses).
How have I been doing what I'm doing? How do I look so normal when you see me? How do I seem to operate as normal when you're around me? Well, Myasthenia Gravis makes things very complicated and confusing. The reason I can do those things you see is because what I also do which you don't see. MG is a pay to play sort of condition. If you want to do something, you have to probably give up something else. For example, if I know I have a reception on Saturday, I need to actually "plan" to rest on Friday and Sunday, and possibly Monday and so on and so forth til my strength is replenished. I actually have to block off time that I can't schedule anything in order to know that I can enjoy those few hours at that reception. The longer or more exhausting the activity planned, the more time I need to plan for rest both before and after. It's like a rechargeable battery but mine dies repeatedly and quickly and takes a very long time to recharge.
Another thing, with all that's been going on, I've been doing very bad on keeping up with my strict diet (which is organic, non gmo, no gluten/sugar/dairy/multiple other things). You see just cooking, just shopping for food, just washing dishes, "just" this and that, it all adds up. The more of other things I do, the less of that I can do. It's all pick and choose or sometimes chosen for you. So unfortunately due to everything going on I've been eating a lot worse and my body can feel it. The better I eat, the better I feel. There is a direct correlation because nutrients feed your body. The "food" we tend to eat these days is really not food and definitely not nutritious. It's harmful and toxic, and I've fallen back into that. So once again I need things to slow down so I can have the time and energy to eat healthier. But it's also more expensive to buy organic, non-gmo, so that's a struggle in of itself.
Anyways, that's all I got for now. Can I ask something of you all please? Can you all please join me in prayer? Not just for my health but for the health of many- for those struggling with MG, with Lyme disease, with POTS, but also those struggling with cancer, with heart trouble, with other health problems, with loss, with pain, with financial trouble. Let's just raise all those we know who are struggling with something up in prayer. Let's actually take the time to pray and to pray with all our heart. God hears and He wants a relationship with you. Let's talk to Him in prayer today. Amen?
Thanks for reading, I'll try to write something more worth it to read soon.
